The couple are part of a group, Truth for Our Babies, who are campaigning for an independent investigation into maternity services at the University Hospitals Sussex NHS Trust. Earlier this month, BBC News and the New Statesman found that at least 55 babies over a five-year period might have survived with better care.
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This tactic is echoed by the NHS, as seen in their recent Hope Takes Flight campaign, urging families to talk about organ donation before its too late.